We currently have a list of registered HLH families, consisting of children and adults, that are part of our Facebook support group. This document is sorted by State/Country where the patient received treatment for HLH, as well as blogs and journals to follow. It can be very helpful to connect with other families in the same treatment center to ask advice, support, etc. If you'd like your HLH warrior to be added, please fill out the form below and I will add it to that directory. Unfortunately, because of privacy issues, I am unable to share that information here on this page as this is a public domain, and I do not have access to privacy controls at this time. If you are already part of the HLH Family Facebook group, then this list is located in the "Files" section.
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