Welcome to your HLH Family!
Welcome to the HLH Support page, I'm sorry that you have a need for us, and it feels strange to say 'welcome' when who really wants to be a member of this club anyway!? But we do want you to feel welcome, and we're glad you're here!
Unfortunately, few physicians are knowledgeable about HLH, and it is often misdiagnosed or diagnosed too late. Without access to effective treatment, primarily bone marrow transplantation (BMT), most patients with HLH die.
As the most experienced facility in the nation in treating HLH, Cincinnati Children’s has assembled a team of researchers, physicians, families who have faced an HLH diagnosis and philanthropists to create the HLH Center of Excellence.
While HLH is rare, Cincinnati Children’s treats a large population of children with HLH. The clinical and research pioneers at Cincinnati Children’s are committed to changing the outcome for children with HLH.
HLH Center of Excellence
Thank you to the Sarasota Herald for bringing attention to this deadly disease!
HLH Support, Kelly Siciliano (formerly Marsh) (Founder)
Located in Sarasota, Florida
See this happy girl? She just celebrated her 12 year transplant anniversary, because of the amazing medical care she received, and because one special donor gave her the gift of life. Happy Anniversary Hannah!
Marsh Family Annual Toy Drive
If you have found your way here because of a toy you received through our local hospital, or wanted more information about the annual toy drive we do, then welcome! Click HERE for more details!